Beyond the Bite is an interview-style series that shares real stories from real people navigating life with alpha-gal syndrome. From diagnosis to daily routines, each story reveals the personal side of this often misunderstood allergy.
When Makaela Meadows first started battling mysterious pain after meals, she never imagined a tiny tick bite could be behind it all. Six months, countless doctor visits, and plenty of frustration later, she finally had her answer — thanks to a wise friend, a little stubbornness, and a whole lot of self-advocacy.
Living with alpha-gal syndrome hasn’t been easy (especially in a barbecue-loving town like Kansas City), but Makaela meets each day with resilience, creativity, and a sense of humor that even a stubborn immune system can’t take away.
Here’s how she’s navigating life with AGS — one meal, one label check, and one big-hearted moment at a time.
The information provided on this site is based on my personal experience living with alpha-gal syndrome. I consistently cite and link to expert sources, but nothing published on this site should be perceived as medical advice.
Alpha-gal sensitivities vary by person. You should understand your dietary restrictions, making any adjustments needed, and directing any questions to your physician.
Meet Makaela Meadows
Sage: Before we get started, tell us a little about yourself.
Makaela: I’m a proud mom of one, a wife of 22 years, and a dog mom to three spoiled fur babies. I’m also the founder of Modestly M Candle Co. and have spent years working in marketing.
Living with alpha-gal syndrome for the past five years has definitely added some challenges, but it’s also taught me to approach life with even more creativity, heart, and resilience.
Symptoms and Diagnosis
For many people, getting diagnosed with alpha-gal syndrome is a long and frustrating journey, and Makaela’s experience was no exception. Here’s how her symptoms started and the winding path that finally led to answers.
Sage: When did your symptoms start?
Makaela: I was very sick for nearly six months, dealing with severe abdominal and esophageal pain. The reactions would flare almost immediately after eating and leave me doubled over for hours, costing me sleep and comfort. I went through countless tests and evaluations, all of which came back inconclusive. I was told more than once that it was “all in my head,” which was incredibly frustrating and disheartening.
"I had to advocate for myself and guide [my doctor] on exactly what to test for."
Sage: How long did it take to get diagnosed?
Makaela: It took nearly 6–8 months before I had any idea what was actually wrong. During that time, I visited the doctor more than 15 times, desperately seeking answers and relief, but continued to come up empty — without a diagnosis or clear direction.
Sage: Did your doctor know what AGS was, or did you have to advocate for yourself?
Makaela: No, my diagnosis didn’t come from a doctor at first. After months of frustration, I started doing my own research. A wise friend casually mentioned she was allergic to meat and wondered if that could be my issue.
I brought it up to my doctor, who initially dismissed it. But I insisted on the test. When the results came back, my alpha-gal levels were off the charts. I even asked the nurse who called with the results to tell my doctor, “I told you so.” He still laughs about it. I had to advocate for myself and guide him on exactly what to test for.
Following an Alpha-gal Diet
At a minimum, being diagnosed with alpha-gal means avoiding all forms of mammalian meat, including beef, pork, and lamb. Some people also need to eliminate dairy products, and a few are even sensitive to the fumes of cooking meat.
Because food plays such a central role in life, culture, and community, adjusting to an alpha-gal diet overnight can feel especially overwhelming. For Makaela, living in Kansas City — where barbecue is practically a local religion — added an extra layer of challenge.
Sage: What favorite foods did you have to give up after your diagnosis?
Makaela: I’m grateful that I can still enjoy turkey and chicken, but I’d be lying if I said I didn’t miss a good hamburger now and then. Living in Kansas City, where BBQ is a way of life, is especially tough. I’ve had to become incredibly careful about everything I eat to avoid any trace of beef, which can be challenging and exhausting at times.
Sage: Do you feel safe eating at restaurants? Why or why not?
Makaela: Yes, most places are very understanding once I explain the reason behind my requests. When I share that I need separate grill space due to a medical condition, they’re typically kind and willing to accommodate — especially once they realize it’s a serious health concern, not just a preference.
Daily Life Adjustments
Alpha-gal syndrome affects more than just what’s on your plate. From the beauty products you use to the medications you take, it can touch nearly every part of daily life. Makaela shares the changes she’s made to stay safe and feel her best.
Sage: Are there any hidden sources of mammalian ingredients that surprised you?
Makaela: I had no idea that collagen supplements could contain beef-derived ingredients — specifically bovine collagen. Even after my alpha-gal diagnosis, I continued taking it, completely unaware it was triggering reactions. I couldn’t figure out why I was still getting sick until I did a deep dive into the ingredients. That’s when it clicked. I’ve since switched to marine-based collagen, and it’s made a noticeable difference. It’s a reminder of how hidden mammal products can be in everyday items.
Sage: Have you had to teach your family or kids how to support you?
Makaela: They’ve learned how to read labels, ask questions, and support me in thoughtful ways. It’s been empowering to see them become advocates right alongside me.
Sage: What would you say to someone who doubts AGS is real?
Makaela: Alpha-gal isn’t a choice or a diet trend. It’s a life-altering medical condition with very real consequences. Just because it’s unfamiliar doesn’t make it any less valid. Awareness and empathy go a long way.
Working with Healthcare Providers
Navigating the healthcare system with alpha-gal syndrome can be challenging, especially when many providers are unfamiliar with the condition. A 2023 CDC survey revealed that 42% of healthcare providers had never heard of AGS, and among those who had, fewer than one-third felt confident diagnosing or managing it. This knowledge gap often places the burden on patients to advocate for themselves. Makaela shares her experiences in seeking informed care and the importance of self-advocacy in managing her health.
Sage: What advice would you give to someone who just got diagnosed?
Makaela: Advocate for yourself. No one knows your body better than you. Trust your instincts, even if others don’t fully understand. And most importantly, be prepared. Learn to read labels, ask questions, and build a support system. It’s a journey, but you’re not alone.
"Living with alpha-gal syndrome has forced me to become my own advocate, to question everything I eat or use, and to speak up — even when it’s uncomfortable."
Looking Ahead
Life with alpha-gal can come with plenty of unknowns, but it also offers perspective, strength, and a renewed sense of awareness. From advocating for more research to finding safer ways to live fully, Makaela shares what she hopes the future holds—for herself and for everyone living with AGS.
Sage: What’s one thing you’ve learned about yourself through this journey?
Makaela: How resilient and resourceful I truly am. Living with alpha-gal syndrome has forced me to become my own advocate, to question everything I eat or use, and to speak up — even when it’s uncomfortable. It’s shown me the power of persistence, patience, and self-awareness.
Sage: Thank you so much for sharing your story and strength with the alpha-gal community, Makaela. Your journey reminds us all how powerful persistence and self-advocacy can be when navigating life with AGS. I’m so grateful you opened up about the highs, lows, and lessons learned. Your voice will make a difference for so many others walking this path!
Want to share your alpha-gal story? Email me at hello@sagescott.com.
